Effective Healthcare Reform Must Include a Patient Perspective

Kevin J Leonard, Sandra Dalziel

Abstract


Patient Destiny’s first “day of action” was the One Patient, One Record symposium held April 2009 in Toronto, Ontario, Canada. The one-day event offered a dialogue opportunity between two distinct stakeholders – healthcare personnel and patients. This symposium brought together key healthcare decision makers and service delivery personnel in direct communication with highly motivated and informed patients. There were more than 100 participants in attendance including close to 50 patients and patient representatives, along with invited healthcare personnel.
During the day, there were 10 presentations from global leaders focused on the area of electronic health records (EHRs) and the dynamic and innovative role that patients can play in a revolutionized healthcare delivery system. In addition, there was open discussion on five previously prepared questions. These discussions each concluded with a vote (in favour or against) of the question and allowed for detailed comments to be submitted.  Herein, we include the rationale for this first day of action to promote eHealth and present voting results summarizing the participants’ varying perspectives.

Keywords


eHealth, Health Informatics, Patient eHealth, Patient Empowerment

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= = = eJHI - electronic Journal of Health Informatics - ISSN 1446-4381 = = =

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