Christine M O'Keefe http://www.csiro.au Leader, Health Data & Information, CSIRO Preventative Health National Research Flagship Australia
Christine M O’Keefe is Research and Business Leader of Health Data and Information in the CSIRO Preventative Health National Research Flagship. She leads projects to develop novel ICT, statistics and mathematical approaches to extracting useful information from health data sets and applying it to preventative health research. Christine holds a PhD in Pure Mathematics and was awarded the Australian Mathematical Society Medal 2000 for distinguished research and the Hall Medal of the Institute for Combinatorics and its Applications 1996 for outstanding contributions. Christine has more than 70 publications in international journals and refereed conference proceedings, and her recent research focusses on privacy-enhancing technologies, including privacy-preserving linkage and disclosure risk and data utility associated with remote analysis servers.
Privacy and the Use of Health Data - Reducing Disclosure Risk
Christine M O'Keefe
In this paper we provide a review of some technological approaches to the problem of enabling the use of health data for research and policy analysis while protecting privacy and confidentiality. We take a statistical viewpoint, and assume that such approaches are implemented in an appropriate governance structure and secure environment. We give five examples of current implementations of such approaches in Australia and one in Canada, and indicate one emerging technology. We note that none of the technologies discussed here is the only solution to the problem, since there are many different scenarios for the use of health data, each with a different set of requirements. It is clear that different technologies and approaches have different strengths and weaknesses, and so are suitable for different scenarios.
Health Data; Privacy; Statistics; Disclosure; Privacy-Enhancing Technology